CHARLOTTE Dyer and Patrick Jones had only a few months with their baby boy Ruben before he died in January.

Now, however, they have now set up a fund in his memory and have raised £21,484 for research into the condition that led to his death.

Ruben was born with GACI (Generalised Arterial Calcification of Infancy), which caused him to suffer with dilated cardiomyopathy and died from the condition at three and a half months old.

His parents are working with Royal Brompton and Harefield Hospitals Charity to raise £200,000 to fund research at the two hospitals into cardiomyopathy.

Charlotte said: “If we can help just one baby or child suffering the effects of cardiomyopathy, by supporting the science to look into this, then this will be our privilege and honour - all in the name of our beautiful baby boy, who impacted so many people in his short life.”

Cardiomyopathy affects 1 in 250 people in the UK and is a leading cause of heart transplantation. It is much rarer in children.

Charlotte and Patrick will be holding events, with the charity’s help, to raise the £200,000. Donations are coming in every day.

You can donate at  //